Thursday, June 19, 2008

Dr.'s, Dr.'s, Dr.s!

Most of you who read this will already be familiar with all the appointments our Noah has had and will continue to have with various doctors, but I thought I'd put a post up anyway.

Noah saw the pediatric GI doctor on May 30. He was referred to this dr. because of the problems he was having with tolerating certain foods. After taking a thorough medical history and examining Noah in his office, the doctor concluded that he was most likely dealing with an allergy problem and not a physiological problem. His reasoning was that if it was something physiological, Noah would not discriminate with the food--he would be sick with everything he ate. This conclusion was despite the fact that his blood allergy test came back negative. The doctor recommended that we see an allergist, so our pediatrician made the referral and Noah's appointment is on July 10th.

Noah had his regular 12 month check-up with his pediatrician on Monday, the 16th. We were obviously already aware of his motor development delays, but the doctor thinks Noah has some other delays as well, particularly in the areas of speech and growth. His main concern for this visit was that Noah's weight remained exactly the same since his 9 month appointment. Zero ounces gained. Some good news since the appointment: Noah is doing better in the eating department, and will now accept yogurt (good source of protein and contains more calories than regular baby food) and he is doing better drinking his liquids (though it is a very tedious process which involves a 1 mL medicine dropper. Thankfully Daddy is more than patient and happy to help in this department)!

We also got to see the pediatric neurologist at UCLA on Monday. It ended up to be an all-day event, but he evaluated Noah and ordered a myriad of lab work for possible diagnoses. He is trying to see if the problem is related to Noah's brain, muscles, genetics, or a combination of these things. He also said many times these things go undiagnosed as just a benign muscle issue and that would be the best. So, that is what we are hoping for. We had to return the next day to do all the lab work. Ten vials of blood and a urinalysis later, Noah decided that was not how he wanted to spend a Tuesday morning ever again! The poor little guy. But he did great in spite of the poking and prodding. One of the tests has to be sent out, so we will have to wait 2-3 weeks for the results. In the meantime, we wait and trust the Lord (though I am tempted to be anxious) and it is a good reminder that Noah is ultimately His child that He has entrusted to us. We will have a follow-up appointment with him in 2 months.

The pediatric GI, pediatrician, and neurologist all recommended that I contact the regional center on Noah's behalf. I don't know a whole lot about it, but it is a county-run program that provides early intervention with physical and occupational therapists. Hopefully they can set Noah on a program that will point him in the right direction for using those legs. It will most likely be about 45 days before he can actually be seen. Until then, we are continuing his exercises at home and just enjoying him for who he is.

It really does seem like Noah has taken leaps and bounds in the last couple of weeks. In the last couple of days, he learned how to click his tongue, make a 'kissing' noise with his mouth, and clap his hands with some amount of coordination. Last night he demonstrated his first recognizable 'sign'--he signed he wanted 'more' food by scratching his leg. I did it for him a couple of times, and then he did it on his own every time I asked him if he wanted more (probably 20 times in a row). He clapped his hands every time I said, "Good boy!" and smiled soooo big. He was quite proud of himself. While we continue to pray for his development and well-being, we are so encouraged to see little steps of progress along the way and we praise the Lord that our little Noah is fearfully and wonderfully made--whatever that may entail.


Anonymous said...

You have LOTS and LOTS of prayers coming to lift the family up!! Noah is a dear, and you are so right that he is wonderfully made. Love you guys, Mom

Anonymous said...

Hi Scott and Amy,
We have been in a very similar place for about 7 years with our oldest- initial diagnosis of
failure to thrive, food allergies, neuro-developmental pediatricians,psychologists, occupational therapy, the waiting for months just to see someone or get therapy, and the many tests....the uncertainty. We are praying for you. Remember that just because they are specialists does not mean that they are always right. You always have the right to a second and third opinion. Trust your parental instincts about the doctors words.
Call if you ever want to talk/vent/pray. We are still on this "roller coaster"
with many doctors and testing in Nashville (our closest regoinal center).
You are often in our thoughts and prayers,
Sam and Rachael